The Shiniest Success

A family in the UK have won a pair of high quality sunglasses for posting the best #ShiningSuccess story on Aniridia Day. This post on Facebook by Caryl received an amazing 161 Likes or Loves!

This is our beautiful daughter Mari, she has just turned 5 and is absolutely amazing. She has WAGR syndrome and Aniridia. She has had a total of 11 surgeries so far and chemotherapy as she developed Wilm’s tumour just before her first birthday. Despite the challenges she’s faced, she never complains and is so happy, full of life and determined. She doesn’t let her condition stop her from doing anything, her vision is poor and she is registered blind, but she rides her bike, goes to swimming lessons, dance lessons and everything else her friends do. We are so proud of her and wouldn’t change her for the world 😊❤

As a result Mari has won a pair of special sunglasses for people with aniridia, very kindly donated by Eschenbach and Prats.

WAGR is a extremely rare condition of which aniridia is just one part. For more details visit the International WAGR Syndrome Association.

Our thanks go to the companies, congratulations to the winners and our unending gratitude to everyone who wrote, commented on, reacted to and shared posts on Aniridia Day.