Celebrating in Moscow

People affected by aniridia came together today in a Moscow cafe to talk and hold an early celebration of Aniridia Day. Looks like it was a #ShiningSuccess!

For more information about this aniridia association, visit http://www.aniridia.ru/en

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To Patients With Aniridia

A boy wrote this poem for our competition.

To Patients With Aniridia

God wanted you to be unordinary,
Aniridia can be tough hard and scary…
People may judge you by your default,
But you should know, that it’s not your fault.

Did your life go the worst?
-You are alive and you still happy?
– Yes, of course!
I know only one thing right,
Your whole life is a fight!

You have pain every day,
But you brighten this world in every way,
You feel like there is no hope,
We know, it’s hard to cope…
But if u believe in yourself,
Sooner or later u won’t need help.

So look at the bright side and live,
People will hurt you but you have to forgive,
Believe in yourself , there is HOPE
You can live on a string or live on a rope!

Hello World, I will be born with aniridia

Winner of the poetry competition among the Russian-speaking countries

 

Hi, everybody , Hello world!
I am a just a few hours old
And I’m still not with you,
But I live and I already love you …
I live and my destiny challenges me ,
I already know who I will be,
I know, I can choose my mom
And I will choose this one …
She is an angel and she needs exactly me…
Hi, everybody, Hello world!
I am a just a few weeks old
And I’m still not with you ,
But I am already breathing and I love you…
I breathe and I know what my mom thinks,
Mom, I’m sorry, but I’ll break your dreams,
You see me perfect in your plans ,
But not everyone has this chance …
I know, it will make you sad …
To have Aniridia it’s not so bad …
Hi, everybody, Hello world!
I am a just a few months old
And I’m still not with you,
But I see the light and I already love you …
I see the light through closed eyelids,
Soon it will be completely different
But I will accept this and I will be strong…
Some people will not understand
But not you… You are my mom…
You are waiting for me and after few hours I will come!
Hello world, hello blinking!
I took my first breath, you heard my first crying,
I am crying for a long time…
Why?
Because then it will be a crime )))
I’m a strong person, I will not cry anymore…
Everything is so simple What for ? …
So simple? So strange , so crossable!!!
But we are together- it means everything will be possible!

Russian text written by Urina Julia English version by Ramy El Desoki Film made by Brunkovskaya Marina Text read by Brunkovskiy Dmitriy