For Aniridia Day 2019 we focused on ‘possibilities’ to improve understanding of aniridia and social inclusion.
We asked people to put on social media a photo/video with an explanation that shows what can be done as a job, hobby, sport or education – while living with aniridia. The hashtag was #CanDoWithAniridia
Here is a selection of videos from the day.
For this year’s Aniridia Day, we want you to focus on possibilities to:
Check what your local aniridia association is planning but here are the basic ideas.
On social media share a photo/video with an explanation that shows what can be done as a job, hobby, sport or education – while living with aniridia.
Tag your Twitter/Instagram/Facebook posts with: #CanDoWithAniridia and @AniridiaDay
On Facebook: join and post in the public Aniridia Day group.
Like, comment on and share what others post too.
Highlight the posts to researchers, medical organisations, celebrities, sports people etc. and ask them to share the posts with their followers
Gathering with others living with aniridia is lots of fun. Take the initiative: pick a time and place and advertise it for people to come to together talk with each other.
You can also organise a stall or presentation or other activities to educate people about aniridia in: schools, libraries, hospitals or other public places.
Ideally, these should happen on Aniridia Day but other dates are good too.
Remember to post a picture on social media about what you did too, tagging @AniridiaDay
The 5th European Aniridia Conference is planned to be in London on 14-16 August 2020.
It will bring together the world’s top aniridia doctors and researchers to improve treatments. The benefits will be felt by all patients worldwide, through the impact of clinical guidelines, scientific articles, and research projects.
Aniridia Network urgently needs £40,000 to make it possible Please do something to help reach that target such as running a cake stall or make a donation. Profits and donations can be paid in to the European Aniridia Conference 2020 fund.
Aniridia associations can also make appeals or organise activities to raise funds for their own purposes. One idea is to collect artwork by children with aniridia and sell them online.
There are many possible ways to give practical help to your local aniridia organisation or Aniridia Europe. Think about the skills you currently have or would like to develop that would be useful and contact them to offer your time.
If you run an aniridia association or social media group, please translate and adapt these instructions and share with as many people as you can to encourage them to participate in Aniridia Day 2019.
Organise any other activities that you want as well. Tell us about your plans so we can share them here too.
Whatever you do, do it in style: order clothing and other merchandise with the Aniridia Day logo from our brand new online shop. All sales raise money for science on aniridia.
Here’s a video about the day
Aniridia Day 