For Aniridia Day 2019 we focused on ‘possibilities’ to improve understanding of aniridia and social inclusion.
We asked people to put on social media a photo/video with an explanation that shows what can be done as a job, hobby, sport or education – while living with aniridia. The hashtag was #CanDoWithAniridia
It will bring together the world’s top aniridia doctors and researchers to improve treatments. The benefits will be felt by all patients worldwide, through the impact of clinical guidelines, scientific articles, and research projects.
Aniridia Network urgently needs £40,000 to make it possible Please do something to help reach that target such as running a cake stall or make a donation. Profits and donations can be paid in to the European Aniridia Conference 2020 fund.
Aniridia associations can also make appeals or organise activities to raise funds for their own purposes. One idea is to collect artwork by children with aniridia and sell them online.
There are many possible ways to give practical help to your local aniridia organisation or Aniridia Europe. Think about the skills you currently have or would like to develop that would be useful and contact them to offer your time.
Aniridia groups prepare
If you run an aniridia association or social media group, please translate and adapt these instructions and share with as many people as you can to encourage them to participate in Aniridia Day 2019.
Organise any other activities that you want as well. Tell us about your plans so we can share them here too.