Category: Spanish/español

Spanish webinars 2020

by Aniridia Day, posted in 2020, Events, Spanish/español, Webnars

On 19 June, the Spanish Association of Aniridia held an online confernce titled “Learning more about Aniridia and Low Vision”. Four experts talked about aspects and pathologies relating to aniridia and low vision.

It had 250 live views and more than 85 simultaneous viewers from several Spanish-speaking countries.

Screenshot of Yolanda and other speakers
Recording on YouTube

It began with Yolanda Asenjo, President of the Spanish Association of Aniridia, who spoke of the importance of early diagnosis, early stimulation in babies, and access to a genetic test. She also offered hope to those parents who have just had a son or daughter with aniridia, explaining her own experience as a person with aniridia and mother of an affected child.

The first speaker was Marta Corton, PhD. Researcher in genetics and genomics at the
Fundación Jiménez Díaz Hospital.

The second speaker was Miguel Ángel Teus, PhD. ophthalmologist. Dr. Teus explained the characteristics of glaucoma, the evolution of the tests to detect it and the existing surgeries.

Afterwards, it was the turn of Juan Álvarez de Toledo, ophthalmologist, who in his presentation “Ocular surface in congenital Aniridia”, He spoke of the main pathologies that patients with aniridia usually develop, such as dry eye or progressive limbar insufficiency, its consequences and possible treatments to be carried out.

To close the conference Miguel Guzmán, optician-optometrist, explained the concept of low
vision, still unknown by many people, and spoke of the different methods to achieve greater
personal autonomy.

The event ended with a video of some members of the Spanish Aniridia Association explaining what aids they use, from filters to refreshable braille displays.

The Spanish Association of Aniridia want to expres our gratitude to the speakers and
participants. We believe that this format has been able to resolve doubts from patients
who, in their day-to-day life, may not have access to information about their pathology.

The conference is now available in YouTube with automatic Spanish subtitles.

Lea este artículo en español.

Programa en PDF

Aniridia y Baja Visión: Conferencia online en español

by Aniridia Day, posted in 2020, Spanish/español, Translations, Webnars

Con motivo del Día Internacional de la Aniridia (21 de junio), la Asociación Española de Aniridia organiza el 19 de junio una conferencia online en español sobre aniridia y baja visión.

See also: Webinars in English, Webinars in italiano/Italian

La Asociación Española de Aniridia, en su afán de informar y sensibilizar sobre esta patología poco frecuente y con motivo del Día Internacional de la Aniridia, organiza, en colaboración con cuatro profesionales expertos en aniridia, una conferencia online sobre aniridia y baja visión que podrá seguirse en directo en su canal de Youtube.

El próximo viernes 19 de junio a las 18:00 (hora peninsular), especialistas de diferentes ámbitos se unirán para aportar una visión global sobre aniridia y baja visión bajo el título “Aprendiendo más sobre Aniridia y Baja Visión”. Se abordarán cuestiones como genética, patologías oculares asociadas o las mejores ayudas técnicas para personas con aniridia.

Este encuentro es una oportunidad única para que personas afectadas, familiares, pacientes con baja visión e incluso profesionales sanitarios, comprendan mejor qué es la aniridia y la baja visión y accedan a la información de la mano de cuatro grandes profesionales.

La sesión contará además con un tiempo designado a turno de preguntas vía chat para cada ponencia.

Programa

Programa conferencia aniridia 2020
Descarga el programa en PDF
  • Presentación
    Yolanda Asenjo, como presidenta de la Asociación Española de Aniridia, afectada y madre de afectado
  • La importancia del estudio genético en Aniridia.
    Dra. Marta Corton Investigadora en el dpto. de genética y genómica de Instituto de Investigación Sanitaria – Fundación Jiménez Díaz- UAM.
  • Glaucoma asociado a la Aniridia: diagnóstico, y tratamientos medico quirúrgicos.
    Prof. Dr. Miguel A. Teus, catedrático en oftalmología en UAH, Clínica Novovisión.
  • Superficie ocular y catarata en pacientes con aniridia, ¿cuáles son las soluciones más adecuadas?
    Dr. Juan Álvarez de Toledo, oftalmólogo, Centro Oftalmológico Barraquer
  • Baja Visión en aniridia: ayudas para conseguir la máxima autonomía personal.
    D. Miguel guzmán, óptico-optometrista, Centro de Baja Visión Ángel Barañano.

Acerca de los ponentes

  • Dr. Juan Álvarez de Toledo: Subdirector Médico y Coordinador del Departamento de Segmento Anterior y Cirugía Refractiva del Centro de Oftalmología Barraquer. Asimismo, es responsable del departamento de Conservación de Córneas del Banco de Ojos para tratamientos de la ceguera.
  • Dra. Marta Corton: Doctora investigadora en el departamento de genética y genómica de IIS – Fundación Jiménez Díaz (IIS-FJD-UAM). Ganadora del premio FEDER con el proyecto “Caracterización genética de la Aniridia en España mediante estudios genómicos y experimentales”
  • Prof. Dr. Miguel Ángel Teus: Coordinador médico de la clínica de oftalmología Novovisión y catedrático en la Universidad de Alcalá de Henares.
  • D. Miguel Guzmán: Óptico – Optometrista especialista en Baja Visión, es Director del Centro especializado en Baja Visión Ángel Barañano.

Enlace a la YouTube Conferencia

Aniridia and low vision online SPANISH conference

Wanting to inform and raise awareness on this rare disease and on the occasion of international Aniridia Day (21 June), Aniridia Spain is organising, in collaboration with four expert aniridia professionals, an online conference on aniridia and low vision that can be followed live on their YouTube channel.

On Friday, June 19 at 6:00 p.m., specialists from different areas will come together to provide a global perspective on aniridia and low vision under the title “Learning more about Aniridia and Low Vision.” Topics will include as genetics, associated eye diseases or the best technical aids for people with aniridia.

This meeting is a unique opportunity for affected people, family members, patients with
low vision and even healthcare professionals, to better understand what aniridia and low vision mean and get information from the four great professionals. The event will also have a designated time for questions via chat for each session.

Agenda

  • The importance of genetic study in Aniridia.
    Dr. Marta Corton, PhD. Researcher in genetics and genomics.
  • Glaucoma associated with Aniridia: diagnosis and medical-surgical treatments.
    Prof. Dr. Miguel A. Teus, ophthalmologist
  • Ocular surface and cataract in patients with aniridia, what are the most appropriate solutions? 
    Dr. Juan Álvarez de Toledo, ophthalmologist
  • Low Vision in aniridia: aids to achieve maximum personal autonomy.
    Mr. Miguel Guzmán, optical-optometrist

About the speakers

  • Dr. Juan Álvarez de Toledo: Medical Deputy Director and Coordinator of the Department of Anterior Segment and Refractive Surgery of the Barraquer Ophthalmology Center. He is also responsible for the Cornea Conservation department of Banco de Ojos for blindness treatments.
  • Dr. Marta Corton: Research PhD in the Department of Genetics and Genomics at IIS – Fundación Jiménez Díaz (IIS-FJD-UAM). Winner of the FEDER award with the project “Genetic characterization of Aniridia in Spain through genomic and experimental studies”
  • Prof. Dr. Miguel Ángel Teus: Medical coordinator of the Novovisión ophthalmology clinic and professor at the University of Alcalá de Henares.
  • Mr. Miguel Guzmán: Optician – Optometrist specialized in Low Vision, is Director of the Center specialized in Low Vision Ángel Barañano.

Conference on YouTube