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Take part in the next international Aniridia Day on 21 June 2019

What is it?

It is a time to coordinate activities and improve understanding of the rare genetic eye condition aniridia. In 2018 we improved understanding of aniridia using international webinars and by describing aniridia sight on social media.

Coffee cup, laptop with a person on screen, notepad and pens   Two photos: a office and a gangway with trees and river in the background

Join our Aniridia Day Facebook group for all the latest activity.

Aniridia Day is a great chance for individuals and organisations to:

  • hold events for people associated with aniridia to meet
  • increase awareness of aniridia,
  • raise funds
  • recruit volunteers

When is it?

Aniridia Day is the same date as the solstice – a property of how high the sun is in the sky. The brightness and position of the sun significantly affects the lives of people with aniridia.

Aniridia Day and the solstice are on 21 June 2019.

Who can take part?

Everyone! We want Aniridia Day to be a truly international event with people in all countries taking part and using it as the basis for activities. 

Whether you have aniridia, know someone with aniridia or neither, please get involved with activities, spreading the word or donating time or money to our causes.

We also want people from around the world to join the Aniridia Day Committee, to help with this year’s campaign, and the organising the day in future years. Find out more about us and the history of Aniridia Day.

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Plans for Aniridia Day 21 June 2019

For this year’s Aniridia Day, we want you to focus on possibilities to: improve understanding of aniridia and social  inclusion support people (with children) with aniridia raise funds for the European Aniridia Conference 2020 in the UK empower national aniridia associations Whatever you do, do it in style: order clothing and other merchandise with the … Continue reading Plans for Aniridia Day 21 June 2019

Participation survey results for Aniridia Day 2018

We ran a quick online survey about participation in Aniridia Day 2018. 25 people responded, 11 of them from the United Kingdom. Here are the results. 88% read social media posts about half posted on social media as part of the #AniridiaSight campaign or more generally about aniridia less than half listened to webinars. Most … Continue reading Participation survey results for Aniridia Day 2018

Meet-ups 2018

Informal gatherings took place to celebrate Aniridia Day 2018. They brought together people affected by  aniridia to share experiences, stories and useful information.   Krasnodar – 21 June Member of the Interregional Support Centre for patients with Aniridia “ Iris” met in a cafe in Russia. Bashkortostan – 21 June Also in Russia, families met … Continue reading Meet-ups 2018

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