Enjoy 2 hours of free, informative, online presentations and discussions about aniridia on 21 June 2020.
Celebrate annual international Aniridia Day and come together virtually to support each other. We have fantastic speakers, plus time to ask questions and chat with people also affected by aniridia.
Anyone around the world is welcome to join on Zoom, for approximately 2 hours from:
14:00 British Summer Time – BST
13:00 Greenwich Meantime – UTC
15:00 Central European Summer Time – CEST
10:00 US Eastern Daylight Time – ESDT
Open discussion for all attendees
Dry Eye Disease and Aniridia Colin Parsloe will talk about the causes and treatments for the gritty sore sensation many feel in their eyes.
“But you don’t look blind?” Growing up with an invisible disability Charles Bloch will talk about challenges and successes at university and finding jobs with aniridia.
Annual General Meeting 2020 of Aniridia Network Reports, financial accounts, questions and comments.
Achievements with aniridia Sinead Kane will give a motivating talk about becoming a lawyer, multi-marathon athlete and world record holder – with aniridia.
Success at Aniridia Centre Dr Natella Sukhanovain will show how she has created an effective centre of excellence at the Research Institute of Paediatrics in the Central Clinical Hospital of the Russian Academy of Science.
Open conversation for all attendees
Don’t miss it. You can only take part if, in advance you:
These webinars are organised by Aniridia Network in the United Kingdom but are open to all with the exception of the Annual General Meeting (AGM). Anyone can watch this session, but only UK and Irish members of Aniridia Network can speak.
Could you speak at an online event to celebrate the day and improve understanding of aniridia? Do you know a patient, parent or doctor who would?
Our plan this year is to hold several webinars about aniridia during the day, that people can watch or take part in wherever they live.
This could take various forms (perhaps followed by questions from the audience):
Another option is discussion on a subject that anyone can take part in. This would still need a someone to lead and manage the session.
The subjects could be narrowly or broadly defined. The target audience could also be small or large: any parents, patients, doctors, or people in a particular country or having a specific surgery related to aniridia.
You can choose the local time and language of the session.
Here are some ideas, but we want to you to invent your own too:
a person with aniridia hosting a ‘Ask me anything’ or demonstrating a screenreader
an open chat for anyone affected by aniridia in Australia
a talk and answers to questions by a aniridia doctor in Russian
a semi-scripted conversation between two parents
simultaneously watching of a YouTube video followed by questions/debate
We plan you use either join.me or appear.in internet conferencing systems . You will just need a computer or a smartphone. If you have a webcam you could use it, or share your screen, or just use audio. We will send you instructions in advance.
We need people like you, all around the world to run these webinars
If you are interested in being a speaker/host write to firstname.lastname@example.org as soon as possible, what you want the subject and format and time (GMT) to be, so we can advertise it.