Informal gatherings took place to celebrate Aniridia Day 2018. They brought together people affected by aniridia to share experiences, stories and useful information.
Four adults and a baby all wearing sunglasses in park
5 people around a table in London Victoria holding up a Aniridia Network UK t-shirt
Krasnodar – 21 June
Member of the Interregional Support Centre for patients with Aniridia “ Iris” met in a cafe in Russia.
Bashkortostan – 21 June
Also in Russia, families met to talk and celebrate in a park.
London – 20 June
Glen and James, Eileen, Chris, Eleanor. Keith and Matt met at London Victoria station for drinks and dinner. They also broadcast live on the internet to wish the world happy Nystagmus and Aniridia Day .
Cardiff – 17 June
Emily, who has aniridia along with her son, hosted a meet up on Sunday for people in South Wales. Four people with aniridia plus siblings and parents met to chat about medical experiences and day to day support over tea and pizza. They are planning to have another get together soon.
The Spanish aniridia association had an information desk between 10am and 1.30pm on Aniridia Day in the hospital where they have their office. The aim was to share leaflets and brochures about what aniridia, the day and their organisation. At the end they wrote hashtags on balloons with some other messages before releasing them in to the air.
Greeks Theoni and her son Markus who has aniridia, met another family affected by aniridia in a cafe to celebrate Aniridia Day. Russians Galina, her son Ramy and daughter Liza, who has aniridia flew in to meet them on the evening of 21 June 2017.
We couldn’t hope for a better way to celebrate for Aniridia Greece on this special ANIRIDIA DAY !!!!!!!!! THANK YOU so much for this wonderful meeting !!!!! We have so much in common like if we knew each other for years !!!!!
Galina who is a member of the Board of Directors and Secretary of Aniridia Europe said:
The kids had a lot of fun. We discussed some points about Aniridia Greece starting as a independent organisation. We also talked also about mission and role of Aniridia Day in the future for people with aniridia in Greece.